The Toronto father of a child with an ultra rare disease will ride his bike this weekend from Pickering, Ont., to Ottawa in the hopes of meeting Prime Minister Justin Trudeau to ask for help with fundraising efforts to save his son.
His son is the only child in Canada with Spastic Paraplegia Type 50, a neurodegenerative disease that will rob him of all his functions, confining him to a wheelchair by the age of 10.
Caryn Lieberman reports on the father’s mission to raise awareness of this rare disease.
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